Jana Nelson, a 53-year-old woman residing in Idaho Falls, found herself facing an unexpected and life-altering diagnosis after seeking medical help for troubling mood swings. Despite her background in psychology, Nelson's journey with dementia serves as a reminder that the complexities of mental health can impact anyone.
Started With A Change In Personality
In 2017, Nelson's family noticed significant changes in her personality – a short temper, extreme mood swings, and repetitive questioning. Concerns heightened as she struggled with maintaining balance while walking, decision-making, and controlling mood fluctuations. Disturbed by her inability to regulate emotions, Nelson expressed her growing frustration, recalling instances of unexpected anger over trivial matters.
Misdiagnosis and the Revelation of Stage 4 Dementia
Initially considering the possibility of multiple sclerosis or a brain tumor, Nelson's doctor recommended neurological tests. However, an MRI scan revealed a harsh reality: Stage 4 dementia, which had already progressed to Stage 5. The revelation left Nelson devastated, challenging her previous belief that she would recognize when something was gravely wrong.
Cognitive Decline and Challenges in Everyday Tasks
As Nelson underwent intensive neurological tests over two days, the process proved demoralizing and devastating. Simple tasks, such as solving basic math problems or recalling flashing light patterns, became insurmountable challenges. Reflecting on her struggles, Nelson questioned why, as a college-educated businesswoman, she was unable to perform these once-easy tasks.
Advanced Dementia and a Limited Time Frame
Contrary to her initial belief that the dementia was in its early stages, Nelson discovered that she was already in the advanced stages with a prognosis of only 10 years to live. The severity of her condition left her grappling with speech issues, a limited vocabulary, and the looming threat of disorientation accompanied by pronounced memory loss.
Documenting the Decline
Despite her challenges, Nelson found solace in documenting her health updates and challenges on TikTok. Connecting with middle-aged individuals facing similar conditions, she formed a community where experiences served as a "roadmap" for others navigating the complexities of dementia. The platform became a space for mutual understanding and support.
By openly sharing her experiences, Nelson has not only confronted the harsh reality of her diagnosis but has also created a supportive community for others facing similar challenges. As she navigates the unpredictable terrain of advanced dementia, her story becomes a testament to resilience and the strength found in shared struggles.